NRG1 Energizers
A special initiative of ICAN, International Cancer Advocacy Network
Improving Survival and Quality of Life, One Patient at a Time
Essential Patient Services
- Ongoing, Direct Navigation of Your Case
- Review of Your Biomarker Testing Reports
- Second Opinion Referrals
- Matching You with Clinical Trials / Expanded Access / Compassionate Use
- Your Own “Angel Buddy” (Patient or Care Partner) to Chat with you about Side Effects
Know Your NRG1 Fusion
- Molecular Profiling Matching Services
- Molecular Tumor Boards (when oncologists disagree)
- Join our Mutational Registry
- Participate in our Tissue Triaging Service
- Join our NRG1 Ambassadors to Emphasize the Importance of RNA Sequencing
Research Initiatives for 2025–2026
- Plan an On-Demand Summit/Video Project for Patients, Care Partners, Scientists, and Research Oncologists
- Recruit for an NRG1 International Research Consortium (in development)
- Plan an NRG1 Pan-Tumor Knowledge Bank Project
- Real-World Evidence Studies and IRB-Approved Survey Research (patients are compensated)
- Clinical Trials Project—identify novel therapeutics post-zeno
The NRG1 Fusion Community: Keeping Up With Developments
- Access to our Social Media Sites (closed group to protect your privacy)
- Access to our Virtual Patient and Care Partner Meet Ups (closed groups to protect your privacy)
- Patient and Care Partner Meet-Ups at Conferences and Academic Medical Centers
- Patient and Clinician Webinars on New Drugs in the NRG1 pipeline
- Research and Literature Updates and Daily Alerts/Postings
- Cancer Conference Updates
Paying It Forward: Helping Our NRG1 Fusion Community
- Become an Angel Buddy for a New Patient or Care Partner
- Participate in our Public Policy Advocacy Initiatives and Briefings
- Train to be an Effective Citizen Lobbyist or Media Interviewee
- Participate in our Speakers' Bureau
- Assist our International Health Equity Efforts
- Volunteer for Clerical and Excel Projects
- Join our Research Teams
Keep the NRG1 Energizers Going
- Help the NRG1 Energizers Raise Funds to Keep Our Patient and Research Services Entirely Free
- Create a Facebook, X, or Instagram Fundraiser Benefiting the NRG1 Energizers
- Donate to Fund These Services
- Donate Appreciated Stock
- Leave a Legacy—Create a Named Program
- Donate In-Kind Services
- Support our Special Events
Leadership
click for full list and biographies
*Marcia K. Horn is President and CEO of
ICAN International Cancer Advocacy Network and
Director of
NRG1 Energizers.
NRG1 Energizers is a biomarker support group under the direction of
